Resources

Resources referenced in multiple elements of this site are cited on this page.

Health Insurance and Portability and Accountability Act of 1996 (HIPAA)

Alcohol and Drug Abuse Patient Records Privacy Law

CalOHII (California Office of Health Information Integrity) has a useful and well-organized section on federal and California laws and regulations concerning health information privacy.

California Health Information Law Identification (CHILI) CHILI is a search tool that assists in identifying California statutes and regulations related to the privacy, access, and security of individually identifiable health information.

California Office of the Attorney General (for links to all of California’s privacy laws)

Center for Democracy and Technology's Health Privacy Project

Citizens' Council for Health Freedom

Council for Responsible Genetics

Department of Health and Human Services and Department of Education: Joint Guidance on the Application of the Family Educational Rights and Privacy Act (FERPA) And the Health Insurance Portability and Accountability Act of 1996 (HIPAA) To Student Health Records.[pdf] (for how FERPA and HIPAA interact)

Genetic Alliance

GeneWatch UK

Genomic Law Report

HealthLawProf Blog

Indiana University Center for Bioethics Newborn Blood Spot Banking: Approaches to Consent - PredictER Law and Policy Update

National Human Genome Research Institute Genome Statute and Legislation Database

Patient Privacy Rights

Privacy Rights Clearinghouse's Medical Privacy Project

The UC Berkeley Chancellor’s Office has a good summary of the Information Practices Act.

World Privacy Forum's Patient's Guide to HIPAA